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Official · health · Feb 23, 2026

Leah Stavenhagen, Advocate for Young Women With A.L.S., Dies at 33

B By Roni Caryn Rabin

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Leah Stavenhagen, Advocate for Young Women With A.L.S., Dies at 33

She started a group intended to counter the notion that A.L.S. was an “older white man’s disease.”

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